We are very proud to announce that we are an official Canadian Registered Charity #805325883RR0001
A tremendous amount of planning and commitment is required to develop a successful foundation. The Board of Directors for The PHACES Foundation of Canada is comprised of families impacted by PHACES, professionals and business people. We are fortunate and proud to have the following skills and expertise on our Board of Directors: accounting, marketing, business development, medical industry marketing and product development, medical sales, investment banking, event planning and fundraising. In addition to professional experience, it is important to share that we also have family experience through the diagnosis and management of PHACES. We know, first hand, the challenges our children face as they navigate the complexities of PHACES in all aspects. This fuels our commitment to ensuring the success of our initiatives and ultimately the success of The PHACES Foundation of Canada.
Volunteers are the heart and soul of the PHACES Foundation of Canada. It is only through the hard work and commitment of our volunteers, that we are able to continue providing support and funding for much needed research into this very rare diease. If you wish to become a part of our talented team of volunteers, please contact us firstname.lastname@example.org We thank you!
Direct link to the PHACE Syndrome Handbook, designed help parents and physicians understand this syndrome and to provide references in guiding care and treatment
If you wish to make a donation to help fund much needed research into this very rare disease, your help would be greatly appreciated. Please visit our personal page on the Sick Kids website where you can make an online donation http://my.sickkidsdonations.com/personalPage.aspx?registrationID=1340074&langPref=en-CA , or contact us directly email@example.com